Center-Authored Papers

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Malen R, Knerr S, Delgado F, Fullerton SM, Thompson B.  2015.  Rural Mexican-Americans' perceptions of family health history, genetics, and disease risk: implications for disparities-focused research dissemination.. Journal of community genetics. Abstract
Kocarnik JM, Fullerton SM.  2014.  Returning pleiotropic results from genetic testing to patients and research participants.. JAMA : the journal of the American Medical Association. 311(8):795-6.
Fullerton SM, Wolf WA, Brothers KB, Clayton EW, Crawford DC, Denny JC, Greenland P, Koenig BA, Leppig KA, Lindor NM et al..  2012.  Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network.. Genetics in medicine : official journal of the American College of Medical Genetics. Abstract
Bennette CS, Trinidad SB, Fullerton SM, Patrick D, Amendola L, Burke W, Hisama FM, Jarvik GP, Regier DA, Veenstra DL.  2013.  Return of incidental findings in genomic medicine: measuring what patients value-development of an instrument to measure preferences for information from next-generation testing (IMPRINT).. Genetics in medicine : official journal of the American College of Medical Genetics. Abstract
Jarvik GP, Amendola LM, Berg JS, Brothers K, Clayton EW, Chung W, Evans BJ, Evans JP, Fullerton SM, Gallego CJ et al..  2014.  Return of Genomic Results to Research Participants: The Floor, the Ceiling, and the Choices In Between.. American journal of human genetics. Abstract
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Amendola LM, Horike-Pyne M, Trinidad SB, Fullerton SM, Evans BJ, Burke W, Jarvik GP.  2015.  Patients' Choices for Return of Exome Sequencing Results to Relatives in the Event of Their Death.. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics. 43(3):476-85. Abstract
Korngiebel DM, Fullerton SM, Burke W.  2016.  Patient safety in genomic medicine: an exploratory study.. Genetics in medicine : official journal of the American College of Medical Genetics. Abstract
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Trinidad SB, Fullerton SM, Burke W.  2015.  Looking for Trouble and Finding It.. The American journal of bioethics : AJOB. 15(7):15-7.
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Trinidad SB, Fullerton SM, Bares JM, Jarvik GP, Larson EB, Burke W.  2012.  Informed Consent in Genome-Scale Research: What Do Prospective Participants Think? AJOB primary research. 3(3):3-11. Abstract
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Goodman JL, Amendola LM, Horike-Pyne M, Trinidad SB, Fullerton SM, Burke W, Jarvik GP.  2017.  Discordance in selected designee for return of genomic findings in the event of participant death and estate executor.. Molecular genetics & genomic medicine. 5(2):172-176. Abstract
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Green RC, Goddard KAB, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL et al..  2016.  Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.. American journal of human genetics. 98(6):1051-1066. Abstract
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Fullerton SM, Trinidad SB, Jarvik GP, Burke W.  2012.  Beneficence, clinical urgency, and the return of individual research results to relatives.. The American journal of bioethics : AJOB. 12(10):9-10.
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Fullerton SM, Anderson EE, Cowan K, Malen RC, Brugge D.  2015.  Awareness of Federal Regulatory Mechanisms Relevant to Community-Engaged Research: Survey of Health Disparities-Oriented NIH-Funded Investigators.. Journal of empirical research on human research ethics : JERHRE. 10(1):13-21. Abstract
Amendola LM, Dorschner MO, Robertson PD, Salama JS, Hart R, Shirts BH, Murray ML, Tokita MJ, Gallego CJ, Kim DS et al..  2015.  Actionable exomic incidental findings in 6503 participants: challenges of variant classification.. Genome research. 25(3):305-15. Abstract