Giving samples or "getting checked": measuring conflation of observational biospecimen research and clinical care in Latino communities.

Publication Type:

Journal Article


BMC medical ethics, Volume 16, p.49 (2015)


Expectations of receiving personal health information as a fringe benefit of biospecimen donation-termed diagnostic misconception-are increasingly documented. We developed an instrument measuring conflation of observational biospecimen-based research and clinical care for use with Latino communities, who may be particularly affected by diagnostic misconception due to limited health care access.