Donald L. Patrick
Ph.D., Columbia University, Sociomedical Sciences, 1972.
M.S., Columbia University, Public Health and Administrative Medicine, 1968.
A.B., Northwestern University, Psychology, 1966.
Dr. Patrick works on the assessment of health status and quality of life in application to adolescents, chronic illness and disability, health promotion, evaluation research, poverty and underserved populations, and dying and death. He was an original developer of the Quality of Well-Being Scale and Perceived Quality of Live Scale. He heads US Field Centre for the WHO Quality of Life Studies, and has developed cross-cultural measures for genital herpes, migraine, urinary incontinence, irritable bowel syndrome, male erectile dysfunction, common cold, and obesity. Dr. Patrick has conducted several cost-effectiveness studies in evaluation of health promotion. He studies chronic illness and disability from many perspectives. He directs the Youth Quality of Life Group [www.yqol.org] and co-directs the End of Life Care Research Group [http://depts.washington.edu/eolcare/] Dr. Patrick is currently developing a generic QOL measure for adolescents with modules specific to public health surveillance and youth with facial differences. He is also working on measures of family experience of youth with chronic illness and the development of outcome measures for evaluating the quality of dying and death.
In 2005 Dr. Patrick published a book with Dr. Rick Deyo on how treatments become standards of practice with or without an evidence base. He teaches Outcomes Research in Health and Medicine at the UW.
Member, Fred Hutchinson Cancer Research Center
Director, Youth Quality of Life Group
Co-Director, End of Life Care Research Group
Senior Investigator, Center for Disability Policy and Research
Inaugural President, International Society for Qualityof Life Research
1995, Institute of Medicine, National Academy of Sciences
How technology gets adopted without evidence
The social determinants of self-reported health and quality of life
Community-level interventions for reducing obesity
Regulation of drugs and devices using outcomes research
Measures of population health
Meta-analyses and literature synthesis of outcomes measures
Environmental indicators of community participation of people with disabilities
Applications of modern test theory to outcome measures
Epidemiology of disablement
Outcome measurement for drugs and devices is high-profile activity. Dr. Patrick has done considerable research in the U.S. and Europe on the use of these outcomes measures in new drug and device approval and in the evaluation of promotional claims and reimbursement. His outcomes research also involves economics and his research crosses the fields of economics and psychology.
(Reading, Writing, Speaking)
French: Functional, Functional, Functional
Academy for Health Services Research and Health Policy
American Public Health Association
American Sociological Association
Drug Information Association
Institute of Medicine, National Academy of Sciences
International Society for Equity in Health
International Society for Pharmacoeconomics and Outcomes Research
International Society for Quality of Life Research
International Society for Quality of Life Studies
International Sociological Association
Society for Clinical Trials
Society for Medical Decision Making
Society for Social Medicine
Honors and Awards
2002, Most Cited Social Scientists,
2001, Senior Health Policy Investigator Award, Robert Wood Johnson Foundation
2001, President's Award, International Society for Quality of Life Research
1996, Fellow, Academy for Health Services Research and Health Policy
1995, Membership, Institute of Medicine, National Academy of Sciences
1993, Cecil Sheps Distinguished Investigator, University of North Carolina
1991, President's Excellence Award, Spina Bifida Association of America
1970, Faculty Fellow, Columbia University
1966, Phi Beta Kappa, Northwestern University
1966, Departmental Honors, Northwestern University, Psychology
1966, A.B. With Distinction, Northwestern University
1982-1987, Associate Professor, University of North Carolina at Chapel Hill, School of Medicine, Social Medicine
1977-1982, Senior Lecturer, University of London, Guy's and St Thomas's Hospital Medical School, Community Medicine, Social Science
1973-1977, Lecturer, Yale University, School of Medicine, Epidemiology and Public Health, Institution for Social and Policy Studies
1969-1973, Research Associate, University of California, San Diego, School of Medicine, Community Medicine
1968-1969, Senior Health Planner, New York State Health Planning Commission
1967-1968, Administrative Intern, Montefiore Hospital and Medical Center, Albert Einstein School of Medicine, Administration
Pain and analgesic use associated with skeletal-related events in patients with advanced cancer and bone metastases.. Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer.. 2015.
Genetic variations underlying self-reported physical functioning: a review.. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation. 24(5):1163-77.. 2015.
Initial constructs for patient-centered outcome measures to evaluate brain-computer interfaces.. Disability and rehabilitation. Assistive technology. :1-10.. 2015.
Problem areas identified as important to older adults with lumbar spinal stenosis.. The spine journal : official journal of the North American Spine Society.. 2015.
Shared Surgical Decision Making and Youth Resilience Correlates of Satisfaction With Clinical Outcomes.. The Journal of craniofacial surgery.. 2015.
Perceived health status and cardiometabolic risk among a sample of youth in Mexico.. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation.. 2015.
The role of technical advances in the adoption and integration of patient-reported outcomes in clinical care.. Medical care. 53(2):153-9.. 2015.
Content validity of Patient-Reported Outcomes Measurement Information System (PROMIS) items in the context of HIV clinical care.. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation.. 2015.
Pain outcomes in patients with bone metastases from advanced cancer: assessment and management with bone-targeting agents.. Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer. 23(4):1157-68.. 2015.
Factors influencing quality of life of obese students in Hangzhou, China.. PloS one. 10(3):e0121144.. 2015.
Minimally important difference estimates and methods: a protocol.. BMJ open. 5(10):e007953.. 2015.
Usefulness of translatability assessment: results from a retrospective study.. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation.. 2013.
Increases in physical activity may affect quality of life differently in men and women: the PACE project.. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation.. 2013.
Quality of life in youth with severe to profound sensorineural hearing loss.. JAMA otolaryngology-- head & neck surgery. 139(3):294-300.. 2013.
Pediatric Patient-Reported Outcome Instruments for Research to Support Medical Product Labeling: Report of the ISPOR PRO Good Research Practices for the Assessment of Children and Adolescents Task Force.. Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research. 16(4):461-79.. 2013.
Psychometric Performance of the Incontinence Quality-of-Life Questionnaire Among Patients With Overactive Bladder and Urinary Incontinence.. Clinical therapeutics. 35(6):836-45.. 2013.
Bullying and quality of life in youths perceived as gay, lesbian, or bisexual in washington state, 2010.. American journal of public health. 103(7):1255-61.. 2013.
Patient-reported outcomes in meta-analyses - part 2: methods for improving interpretability for decision-makers.. Health and quality of life outcomes. 11(1):211.. 2013.